Student-Friendly Care
The case for school-based health centers
by Nina Hurwitz and Sol Hurwitz
Reprinted with permission from American
School Board Journal, August 2000. Copyright 2000, National
School Boards Association. All rights reserved.
The school-based health center in Evanston Township High School's sprawling
complex north of Chicago is just around the corner from a row of classrooms.
But once students step inside the attractive reception area, they enter
a world that is more like a modern doctor's office than a suburban school
room. In state-of-the-art examination rooms, a medical and mental health
team, backed by a support system from Evanston Northwestern Healthcare,
is providing student-friendly medical care and counseling to kids who
otherwise might go without it. "This is a safe place to talk about whatever
you have on your mind," a poster proclaims.
Evanston Township's school-based health center -- designated a national
model by the National Assembly on School-Based Health Care -- is one of
more than 1,300 such centers nationwide. School-based health centers treat
a wide variety of ailments, from asthma -- the No. 1 cause of school absence
for chronic illness -- to the common cold, from child abuse to drug abuse,
from depression to sexually transmitted diseases.
A key to the centers' effectiveness is the opportunity, rarely afforded
by other health care providers, to uncover and address emotional and psychological
issues that are often masked by routine medical complaints. "For most
kids the schools are the default mental health system," says John Schlitt,
executive director of the National Assembly, a Washington, D.C.-based
advocacy group. Indeed, the need for mental health care -- the service
most often provided by school-based health centers -- is growing. A survey
covering more than 21,000 youngsters ages 4 to 15, published in the June
issue of Pediatrics, finds that emotional and behavioral problems
have more than doubled from 1979 to 1996.
The typical school-based health center is sponsored and operated by
an established hospital, health department, or community health center
in a facility provided by the school district. Day-to-day management is
shared in various combinations by an off-site medical director or administrator
from the sponsoring medical institution and an on-site center coordinator.
Most centers offer primary health care, mental health services, health
education, and preventive care, along with physical exams and immunizations.
These services are usually administered by a nurse practitioner or physician
assistant and a clinical social worker, aided by administrative personnel.
Outside medical and psychiatric specialists are also available for referrals
and visitations.
School-based health centers are located in 45 states and the District
of Columbia. High schools and middle schools house more than half of them;
elementary schools account for a third. The large majority of the centers
are located in poor urban and rural areas, where primary health care,
psychological services, and preventive care are scarce and children are
likely to be uninsured or underinsured.
Convenience gives school-based health centers a clear advantage over
the traditional doctor's office. "Adolescents do not carry appointment
books," says Dr. Philip J. Porter, a pediatrician and one of the earliest
supporters of school-based health centers. "Health services need to be
where students can trip over them."
Ideally, the decision to establish a school-based health center follows
a rigorous community assessment of student health needs and available
resources. In communities where prevention and early intervention are
the top priorities, citizens might choose to invest in an elementary rather
than a high school health center. Where space is an issue, communities
might have to make do with barely converted classrooms, provided such
facilities can deliver high-quality care.
School boards are essential participants in the decision-making process.
Although boards do not ordinarily provide financial assistance, they must
approve the decision to start a health center, and they usually supply
in-kind support in the form of space, renovation, security, and janitorial
services. To ensure that the center complies with board policies, the
school and the health care partners sign a contract or "memorandum of
understanding" that spells out issues of responsibility, liability, and
levels of service.
"A fundamental school board responsibility is communicating to the community
-- including parents, staff, students, and the media -- the benefits the
health center will offer students and the school," says Brenda Z. Greene,
director of school health programs for the National School Boards Association
in Alexandria, Va. "And it's up to the board to make sure that its established
decision-making process is followed to maintain trust with the community
and avoid controversy."
A community concern
School-based health centers were first established in the early 1970s.
Organized opposition to birth control counseling and the dispensing of
contraceptives slowed their progress in the1980s, but since then, efforts
to raise public awareness, use of parental consent forms, and fear of
AIDS and other sexually transmitted diseases have counteracted most concerns.
In the 1990s the growth of school-based health centers resumed. But
despite a recent surge in their numbers -- from only 600 six years ago
to the present 1,300-plus -- future expansion is uncertain. With median
operating costs running at more than $200,000 per center annually, the
overriding question is whether the centers can secure dependable long-term
support. For now, they must rely on a chaotic and bureaucratic funding
system that means centers must piece together the necessary funding from
a variety of sources.
Constrained by limited resources and complex regulations, the management
of school-based health centers has become increasingly onerous. State
accreditation standards require consultation with medical specialists,
adherence to strict medical protocols, and meticulous record-keeping.
The need for constant communication with school and community interest
groups competes with the health center's primary mission: to deliver care
to students.
To strengthen public acceptance, health centers have found it useful
to form community advisory boards that participate in policy and planning
and give support and feedback. Representing a cross-section of community
interests, these advisory boards often include medical and social service
providers, school board members, parents, civic leaders, clergy, and financial
supporters.
Evanston school board president Elizabeth Tisdahl believes the extensive
community outreach of Evanston's 30-member advisory board was crucial
in achieving victory in a divisive year-long battle over including reproductive
health among the center's services. "I don't believe the board would have
voted for it if the advisory group had not recommended it," she says.
In a poor urban setting, school-based health centers face a different
set of priorities. George Washington High School's school-based health
center, a joint venture of New York Presbyterian Hospital and the Columbia
University School of Public Health, serves students from an impoverished
Hispanic neighborhood in upper Manhattan that was until recently a hotbed
of drugs and violent crime. Stressing HIV prevention and avoidance of
other high-risk behaviors, the center is a life-saving force in the delivery
of health care, psychological services, and preventive care to the school's
underserved and often uninsured population.
The largely immigrant community surrounding the school lobbied to establish
the health center, but, in contrast to Evanston's activist population,
it now provides relatively little advice on policy or programs; rather,
the health center's bilingual staff relies primarily on its medical partners.
As for distribution of contraceptives, the health center is guided strictly
by New York State law. "We explain to parents who want to opt out [of
birth control counseling] that under state law, adolescents would have
access to reproductive health services, even without their parents' permission,"
says clinic director Pamela Haller, an ordained minister with a degree
in public health. But most do give permission: "Our enrollment speaks
for itself -- our parents want their kids to have access to those services,"
she maintains. Haller estimates that nearly 90 percent of the school's
1,500 students are enrolled with parental consent for all services, including
reproductive health.
A compelling need
School-based health centers represent a departure from the pattern of
the school nurse or visiting public health nurse as the sole dispenser
of health care in the schools. Faced with a growing incidence of emotional
problems among their students, communities are recognizing that comprehensive
school-based health centers, linked to mainstream medical institutions,
might be the best and perhaps the only checkpoint for identifying and
treating potentially serious dysfunctions.
What's more, school-based health centers reduce barriers to learning
and help keep students in school. They allow teachers to concentrate on
their students' academic performance, and help parents who can't afford
to miss work for their children's doctors' appointments. They also reduce
the number of hospital emergency room visits and 911 calls.
As statistics from the Centers for Disease Control and Prevention and
other sources show, the case for adolescent school-based health centers
is especially compelling:
- Adolescents (ages 10-19) have the lowest use of health care services
of any age group and are the least likely to seek care at a doctor's
office or hospital.
- Seventy percent of adolescent health problems are due to violence,
substance abuse, tobacco use, inadequate physical activity, poor dietary
habits, and risky sexual behavior. Four in 10 girls become pregnant
at least once before age 20.
- The leading causes of adolescent deaths have changed from illness
and birth defects to injuries, both intentional and unintentional. For
young people 15 to 24, suicide is the third leading cause of death,
after unintentional injury and homicide.
- During puberty, in particular, physical and mental health issues are
interconnected. By offering physical and mental health services in the
same location, school-based health centers can respond to students who
are more likely to reveal emotional problems during a medical visit
in a comfortable setting.
The case is also compelling for children from poor families, who suffer
disproportionately from ill health. School-based health centers are uniquely
positioned to target children in economic distress and supply easy-to-reach
medical, mental health, and preventive services of high quality. Yet,
the centers represent a remarkably small proportion of the estimated 10,000
urban and rural schools that serve predominantly low-income children.
An uncertain future
Why have school-based health centers failed to reach a critical mass?
One explanation is that the public's preoccupation with upgrading academic
standards has obscured the fact that sick or troubled kids have difficulty
learning. For politicians, moreover, raising test scores seems simpler
than creating new institutions with funding sources that cross jurisdictional
lines.
A second and more fundamental explanation is that the patchwork of federal,
state, local, and private funding sources is a nearly insuperable barrier
to the centers' long-term expansion and growth -- to moving "from demonstration
to scale," as Julia Graham Lear, head of The Robert Wood Johnson Foundation's
Making the Grade program, puts it.
Currently, the federal Healthy Schools/Healthy Communities program supplies
$14.4 million to support 62 school-based health centers across the country.
The federal government also makes funds available to the states through
the Maternal and Child Health Block Grant program ($9.3 million was allocated
to centers by the states in 1997-98) and from the federal Centers for
Disease Control and Prevention for education programs such as those to
reduce tobacco use and the spread of HIV and other sexually transmitted
diseases.
Although there are huge disparities among the states, state dollars
in aggregate remain the largest funding source. In addition to administering
federal block grants, 21 states allocated $29.6 million in general funds
in 1997-98, with New York, Connecticut, Delaware, and Louisiana leading
the way. Texas, though, will discontinue funding for school-based health
centers starting next month. In Illinois, Massachusetts, and Louisiana,
funds from settlements of tobacco suits have been earmarked specifically
for school-based health centers.
Increasingly, state funding has been supplemented by city and county
funds. In 1995, the last year for which figures are available, local dollars
provided 46 percent of the total budgets of school-based health centers
in 11 cities. In 1996-97, four communities -- Dallas, Denver, Seattle,
and Portland, Ore. -- reported receiving well over 50 percent from local
funding.
Mindful that combined direct government support remains insufficient,
health centers are being forced to take the market approach of chasing
revenues from managed care plans. These plans now provide reimbursement
for services for students eligible for Medicaid or for the new federally
supported State Children's Health Insurance Program (SCHIP). Seeking reimbursement,
however, has entangled the centers in a web of negotiation, enrollment,
documentation, and record-keeping that has been time-consuming and only
partially successful. In Illinois the enrollment process has proven so
frustrating that the state awards a $50 bonus to the sponsoring agency
for each completed application to KidCare, the state's version of SCHIP.
Reimbursement usually entails a struggle to be recognized by Medicaid
managed care plans. (In New York City, for example, this has involved
the negotiation of more than 2,000 contracts.) Even then, many plans fail
to recognize nurse practitioners as health care providers and refuse to
reimburse such core activities as mental health counseling and preventive
services. Others require centers to maintain coverage 24 hours a day,
seven days a week.
Among private funders, The Robert Wood Johnson Foundation, a pioneer
in the school-based health center movement, was instrumental in developing
a national model for good care. The foundation has supported both the
establishment of school-based health centers and the search for new funding
partners. Now, through its Making the Grade program, the foundation is
encouraging the reorganization of state and local funding policies. The
Carnegie Corporation, the W.K. Kellogg Foundation, regional and community
foundations, private corporations, hospitals, and health organizations
have also supported school-based health centers.
Advocates of school-based health centers see no way out of the maze
of multiple funding sources. Rather, centers will need all the political
skill they can muster to maneuver through difficult bureaucratic terrain.
The emergence of independent state coalitions of school-based health centers
should aid this endeavor. The coalitions, which now operate in 15 states,
are proving successful in organizing networks of child health advocates
to explore funding opportunities, share information and strategies, and
develop standards for school-based health centers.
Making health centers work
While advocates worry whether school-based health centers can be sustained
financially, employees of the centers must sort out day-to-day relationships
with the teachers, administrators, and health personnel in their school
-- relationships that are often complicated by clashes in mission and
culture between the disparate worlds of education and health care.
Teachers and administrators are concerned with academic standards and
want their students to remain in class. They might regard a visit to the
health center as an excuse to avoid class work. Health center personnel
are more attuned to the students' physical and emotional concerns and
tend to regard repeated visits to the center as symptoms of deeper problems
that need to be addressed by a skilled professional.
School administrators, teachers, school social workers, and guidance
counselors expect reciprocity in sharing information about students. But
health center personnel need to follow medical standards of confidentiality
regarding student problems and their treatment, and that can lead to frustrations
on both sides. However, they are required by law to warn parents and appropriate
school staff if students pose a danger to themselves or others.
In most schools, the health center occupies renovated quarters. Teachers
might resent the loss of space and envy such amenities as telephones,
beepers, computers, and adequate filing space, which are ordinary tools-of-the-trade
for school-based health centers.
Establishing cooperative relationships is the joint responsibility of
school principals and health center directors, though school board policies
can set useful guidelines. Practitioners nationwide have found the following
strategies successful in encouraging staffs from the two different worlds
to work collaboratively:
- Principals introduce health center personnel and explain their mission
at the opening-of-school orientation meeting. They describe jointly
developed policies regarding the health center's hours of operation
and procedures to promote proper use of the center by students. They
encourage teachers, guidance counselors, and other school personnel
to make appropriate referrals. They inform the school staff of procedures
developed with the health center staff for schoolwide crisis intervention.
- Health center directors and their staff use school registration days
to introduce services to parents, obtain parental consent for use of
the center, and provide information on health insurance plans. They
organize open houses to familiarize school staff, parents, and students
with the center's services. They make presentations at parent-teacher
meetings and send home informational flyers and newsletters with students.
They provide for health coverage when the school is closed.
- Health center personnel reach out to the school staff (especially
school social workers, guidance counselors, health teachers, and physical
education instructors) to exchange information and plan joint activities.
They provide faculty training and make classroom presentations. They
explain the need for medical confidentiality, and, with student and
parental permission, share information regarding students' problems
and treatment when appropriate.
As school-based health centers face an uncertain future, they are finding
that expansion and growth will depend not only on the availability of
dependable funding but also on how well they manage their resources and
answer to their constituencies. Medicaid managed care, for all its complications,
is forcing business-driven efficiencies and information collecting. Funders
are demanding research and evaluation of outcomes. These are challenging
tasks for school-based health centers, which often operate using part-time
personnel and without a full-time director on site.
Despite the obstacles, advocates are convinced that school-based health
centers meet a pressing need. "Look, we read every other week about some
new tragedy involving kids, where we think a mental health intervention
or health intervention -- or prevention -- might be useful," says Julia
Graham Lear. "And we know that school-based health centers, with well-trained
professionals who are connected to established medical providers, have
a pretty good record in this regard."
Nina Hurwitz and Sol Hurwitz
are freelance education writers in Rye, N.Y. Their article "Tests
That Count" appeared in the January 2000 issue of American
School Board Journal.
A coalition builder in Illinois
AS A FORMER DIRECTOR of a school-based health center, Ann Marchetti
believes deeply in their effectiveness. Marchetti, staff director of the
Illinois Coalition of School-Based/Linked Centers, has used her prodigious
personal and political skills to create coalitions of advocates, persuade
Illinois officials to improve funding for school health-care centers,
and identify new sources of financing. Her efforts have led to the inclusion
of school-based health centers as a line-item in the state budget and
an improvement in the state grant formula.
The Illinois Coalition's 300 members, Marchetti says, provide "strength
in numbers" and new opportunities to "learn from one another." But much
of the credit goes to Marchetti herself: She has organized students to
lobby the state legislature; persuaded Paul Vallas, chief executive officer
of the Chicago Public Schools, to renovate existing health centers and
designate space for centers in new schools; and enticed foundations and
private organizations to support the coalition -- in one case without
submitting a formal proposal.
Describing her lobbying technique with one state legislator, she recalls:
"I argued the case, and he ended up asking, 'How much do you want?' I
threw out a figure, and he said, 'Done!'" -- N.H. and S.H.
Online resources
Adolescent and School Health
Division, Centers for Disease Control and Prevention
Center for School Mental Health
Assistance, University of Maryland
Healthy Schools/Healthy
Communities, U.S. Department of Health and Human Services
Making the Grade: State
and Local Partnerships to Establish School-Based Health Centers, Robert
Wood Johnson Foundation
National Assembly on School-Based Health
Care
National Governors'
Association, State Children's Health Insurance Program
National School Boards Association
School Health Programs
UCLA School Mental Health Project