Caring for Kids: Expanding Dental and Mental Health Services through School-Based Health Centers

Expanding Mental And Dental Health Services
within School-Based Health Centers:
Operations and Evaluation Challenges


Summary

The Caring for Kids initiative funded by The Robert Wood Johnson Foundation is supporting the development of several models for expanding mental and dental health services within school-based health centers. A primary objective of the grant program is to describe the process by which these models are put in place and assess their strengths and weaknesses. This edited transcript describes the operations and evaluation challenges that the grantees have experienced or anticipate and summarizes remarks by school-based health center research and evaluation expert, Dr. Linda Juszczak.

Grantees developing mental health initiatives report that their greatest operational challenges include: securing and sustaining support for organizational change, blending mental health disciplines, and defining the relationship between the health center's mental health providers and the school's academic program. Program evaluation issues include defining who is a mental health provider and what is a mental health encounter and determining if a program evaluation can measure whether the new service improves students' mental health status. Summary tables are found on pages 10 and 16.

Grantees developing dental health initiatives report their major challenges as: integrating children's dental issues into the medical staff's physical assessments, overcoming community and parent disinterest in the importance of dental health, and connecting dental services with disease prevention/health promotion initiatives in nutrition, tobacco use, and injury prevention. Evaluation questions to be addressed include: Who do we serve? Do we improve access? Are we improving community or parent understanding that sealants and dental care generally are important?

Introduction

In June 2002, the 15 grantees of The Robert Wood Johnson Foundation Caring for Kids (CFK) Initiative met in Denver, Colorado to discuss the challenges and opportunities they are confronting in launching new mental health and dental health programs within school-based health centers.

While some of the challenges were similar for both groups, how to collaborate with colleagues from different disciplines, for example, others were unique. While mental health programs wrestle with definitional issues in the design of data-gathering systems, dental programs struggle to decide whether they need two consent forms or one to provide preventive and restorative services. Dental programs also felt uniquely challenged in engaging parents in caring for their children's dental needs.

This discussion reflects grantees' experiences from their first six months of participation in Caring for Kids.


Project Evaluation: An Overview

Linda Juszczak, DNSc, MPH, CPNP, Director of the National Assembly's Center for Evaluation and Quality at Montefiore Medical Center, led off discussions of research, evaluation, and quality improvement and with an overview of basic issues. The following comments summarize Dr. Juszczak's remarks on program evaluation.

The goal of most evaluations is to provide "useful feedback" to a variety of audiences including sponsors, donors, client groups, administrators, staff and other relevant constituencies. Since their earliest days, school-based health centers have attempted to document their effectiveness. Project evaluation efforts by the Caring for Kids grantees will be particularly important because relatively few published evaluation studies have focused on mental health services organized by school-based health centers and even fewer have evaluated the impacts of dental programs organized by the centers.

To assist in planning an evaluation of CFK-funded projects, Dr. Juszczak emphasized evaluation basics to be kept in mind:

  • The difference between what we might want to measure and what we can measure. In most evaluation work associated with school-based health centers, evaluation thinking has run something as follows:
What we want to measure:
- Wellness
- Holistic health
- Lives saved
- Life success
- Cost efficacy
What we can measure:
- Enrollment/visits
- Who uses services, how much they use and if they use more or less than other sites
- Bad behaviors
- Success in advancing a grade
- Effects of short-term interventions on small groups of students

To get the evaluation job done, we sometimes have to settle for the do-able as opposed to the most fundamental questions that we would like to wrestle with.

  • The importance of defining project goals that are to be evaluated. There are multiple possibilities: improving access to certain services; achieving certain outcomes; or demonstrating an improvement in quality of care. Be clear about the questions you will answer in your evaluation.
  • After the evaluation question or questions are selected, the study design, including the data elements required and the methods to be used to collect the data, can be developed.
  • Other important tasks include: assessing the resources available to the project - money, time, and expertise, and establishing a timeline, and determining how the study's findings will be used to inform both the school-based health center's practice and the policies that impact its programs.

Data sources commonly include: management information systems, standardized data collection instruments, surveys, interviews, and focus groups.

Examples of evaluation indicators often associated with school-based health centers are the following:

Percent of students screened for: general health, reproductive health, nutrition problems, violence and injury risk, pregnancy and STI risk factors, sexual abuse, mental health or behavioral health problems, school performance, family dysfunction, and dental health.

Percent of students receiving; general physical exams; dental exams/sealants, restorations; immunizations; STI testing; annual pap smears and pelvic exams, and mental health services.

There are many challenges associated with the definitional work that needs to be done before evaluation studies can be put in place. What constitutes a service? Who is a mental health provider? What are the definitions for assessment, evaluation or treatment? Are you going to track all services or just look at a particular type - individual, group, family? Do you want to look at service coordination? If you are looking at outcomes, how do you approach the dose/response issue, ie. how much of what for how long?

There may be specific mental health outcomes you want to examine. These could include:

  • High parent satisfaction
  • Students with behavioral issues can demonstrate self-care skills
  • Patient perception that well-being has improved
  • Increased compliance rates as measured by follow-up visits completed, prescriptions filled, therapy attended, referrals completed, etc.

Dr. Juszczak concluded with two main recommendations for developing successful evaluation studies. First, to be successful, staff must buy-into the notion that the school-based program is accountable to its patients. their families, funders, and stakeholders for progress on stated program goals. The evaluation can serve as a vehicle for reporting back to these critical audiences. Second, successful evaluations involve staff in their development as well as implementation. Staff buy-in, essential to data collection on which evaluation depends, requires not only staff support but staff insights and contribution to evaluation design.

While evaluation research conducted within school-based health centers has particular advantages -- access to a convenient population, a well-defined intervention, the availability of related data from the school system and perhaps other sources -- there are substantial challenges as well. These include those listed below.

Challenges in Conducting SBHC Evaluations

Implementation issues

  • Difficulties in attaining pre-intervention data
  • Tremendous variability in the SBHC model
  • Political/administrative hurdles to implementing evaluation
  • Researcher/evaluator bias
  • Written parental consent

Research design challenges

  • Small sample sizes
  • Difficulty getting appropriate comparison groups
  • Self-selection in enrollment in SBHC and use of SBHC
  • Prevalence of problems being studied, eg. at-risk of asthma vs. at-risk of suicide
  • Shifting denominators due to transfers, dropouts, "stop"outs
  • Shifting numerators due to fluctuating daily attendance

Juszczak, June 2002

Other challenges may impede the evaluation. While health centers generally try to identify if students are receiving services in the community, not all centers have good data on the role of community-based providers. Similarly while staff will likely be aware of major developments within the school and community that may confound intervention effects, this is an area of uncertainty. School-based health center staffers may also find the data demands of the evaluation too burdensome for full compliance. Time commitments -- especially those caused by additional data collection -- and technology issues may also impede the evaluation.

Obviously, these are reasons why evaluation plans are not always converted to evaluation reality. But the hard truth is that funders, whether public or private, have become increasingly sophisticated in their understanding of research and what constitutes an acceptable level of evaluation research. We really have no choice. We will need to find ways to evaluate what we do with credibility and timeliness.

Next: Mental Health Challenges